Pregnancy and Infant Loss Awareness Day, 2017

This day is so important to us, and to many bereaved parents. It is a day for honoring the memories of little ones lost, and for trying to break the silence surrounding pregnancy and infant loss.

I have posted many times in the past about this topic, and now, parenting after loss is bringing a whole new perspective to this date. I often look at our little one and think about the siblings she sill never meet. She could have had a big brother or sister two years older than her. How would they be together? Would they look alike? Would they play together or antagonise each other? How would our lives as parents be different with two instead of one? It's even possible, given the timing of our losses, that she could have two older siblings, what would THAT look like for us?

And then I get to thinking that if we hadn't lost those babies, maybe we would never have had her. Our little Squish might never have been born due to spacing gaps between siblings or a whole range of other issues that can come with bringing home a baby.

Parenting after loss can bring such guilt too. There have been so many times when we have been struggling with sickness, sleep deprivation or simply not knowing how to ease our little one or what she needs, that we have been cross with her or with each other. And then to feel such guilt for not always being 'happy' with our little miracle. We love her more than anything, but she's still a baby! And babies can be a challenge!

If you are grieving the loss of a little one, our thoughts are with you. Especially to those who suffer in silence and have not told their friends or family about their loss. love and hugs to you x

Picture from Luminous Light Studio

Christmas Memories

Family announcements

I have written previously about having three work colleagues announce their pregnancies, all due within two weeks of each other, and the toll that this took. I also mentioned at the time that I didn't know how I would cope if it came to a family member announcing their pregnancy. Now I know.

Last year my aunty publicly announced that my cousin was expecting her first. Thank goodness I wasn't able to attend the function (for a completely unrelated celebration) as I am sure that no one would have thought to 'warn' me ahead of time. That was horrendous, especially coming just before the first anniversary of one of our losses, and the only way I have been able to cope was to 'hide' my cousin and aunty from my Facebook as they live too far away to see face to face. I still have to manage people wanting to tell me all about how wonderful and gorgeous her little boy is, which I am sure is all true, but I just can't bear it myself. She's much younger than me and hadn't even been married a year when her little one was born. I remember thinking at the time that I could just about handle that, as we had never been incredibly close (due to age and geographic location!) but I was dreading finding out that my much closer cousin was expecting.

I just found out yesterday.

I have to say, it wasn't a surprise. I had actually been thinking about her most of the morning, wondering if they were trying, and so on. When I visited my nan she started with the rather formal, "I've been asked to tell you something" and I thought I was about to get a telling off for something I had or hadn't said to my mum (guilty conscience?) Instead, she told me that my cousin was expecting and is currently 13 weeks. I was ok until she said that she'd been asked to tell me so that I wasn't alone when I got the news, as they knew it would make me sad. Then I cried.

Then I tried to explain, through tears and hugs, that I'm sot 'sad' but a whole lot of other things. And that I am genuinely happy for my cousin but that it just makes me that much more aware of what we have lost.

I almost wanted to tell her, "So am I!" but as we have decided to wait I managed to bite my tongue. I did remind my nan that my cousin's baby would be her 4th great-grandchild. It felt important that she know that (even though technically 6th, but they only know about 3 of our 5 losses).

The pain I feel is completely different now to what I expected. She's due just 3 weeks before me. I feel even more certain now that something is going to cause me to lose this baby and it's going to ruin me because unlike the other cousin on the other side of the family, this cousin I see 5 or 6 times a year and for every major holiday and family birthday. There is already a little underlying... jealousy I suppose is the word, for how apparently perfect her life has been and this would just top it off.

Part of me knows that thinking this way is irrational, yet after all our past experiences I just can't imagine having a baby of my own to hold. I suppose only time will tell. Truth be told, I am nervous about visiting my nan over the next few weeks as my cousin often pops in at the same time. I just don't think I can face that at the moment.

Outlander - "Faith"

I haven't really written here before about the types of things I spend my time doing that aren't related to TTC or PAL. I guess all of that is so very personal and huge that everything else seems kind of petty and insignificant. This time, the two have overlapped.

For the longest time, I have loved the Outlander books (although when I picked up the first book in the series while I was at uni it was called "Cross Stitch" which I always thought was strange as that title has nothing to do with the book!). I have read all of them multiple times, except the 8th and most recent in the series which I have only read once.

The second book in the series if full of heartache and loss for Jamie and Claire (the main characters) and one part that always stood out to me was the description of the still birth of their first daughter, Faith, and the way in which the both individually grieve this loss. Claire had believed she was unable to have children and then her first pregnancy ended in such heartache.

The last few years, having experienced pregnancy loss myself, I was in equal parts anticipating and dreading this part in the stunning TV adaptation. In the lead up to Season 2 I remember saying to hubby that if they somehow cut this part out I would stop watching, even though I adore the series almost as much as the books. It just wouldn't feel right, and would further buy in to the taboo surrounding pregnancy and infant loss.

Last week's episode showed the lead up to their loss, Claire bleeding and then hemorrhaging before waking up and screaming "Where is my baby?" and even that had me in floods of tears and hubby comforting me saying how awful it all is and that it'll be hard on me to watch and maybe I should wait. He's not usually one for needless hugs but last week he just kept holding me and I was so grateful.

This week's episode is called "Faith" and I guess follows the loss of their daughter and everything that follows on from that (having read the book over and over I have a fair idea!) but I know it will still be hard. But I am also glad, because maybe it will do a little to help people who have never experienced this to understand a little of what impact such as loss can have.

At least, that was my hope, until reading on the official Facebook page this morning and looking at some of the comments. Most tragically, someone had written that they hoped this part would be written out of the series because it was hard to read so would be harder to watch. All I could think was, imagine how hard it is to live! Why should this type of pain and loss be edited out of life, out of books or TV because it is hard for people to witness? Isn't that what causes so much of the taboo around pregnancy and infant loss in the first place? Being scared of how others will react?

I will watch, I will cry and I will be happy that these writers had the courage to address such a heart wrenching but significant part of so many of our stories.

Beginning again, again

Hubby and I take a lot of these silhouette photos when we travel. He's a little shy of having his photo taken, so this was our compromise. We took one just before our first miscarriage and when I look at it, it seems fitting somehow. We are still here, but in a sense we are just shadows of what we were before. We're working hard at getting back to their light, but at the same time, I don't think the light will ever shine quite that brightly again.

Physically things seem to be going well since the miscarriage. I have keyed up the Ovia fertility app again and it is stubbornly telling me that we are right in the middle of my fertile window although I haven't felt that tell tale ovulation pain at this point. I am not really expecting anything, we have mostly decided to at least wait until my first period before trying again.

I was told again that we get to have fun trying again. It's just not fun. The first two times we dtd after our most recent loss I cried. Before, during and after. They say sex is all in the head for women (not that I agree) but in this case all I could think of was that there should still be a baby in there and then we wouldn't be 'trying' at all. And I cried for our baby, our loss, our grief, my husband and myself. Then I cried because I was crying and... well, it goes on.

The grief is almost unbearable at times.  I look at my beautiful husband, a father with no children to hold and my heart just feels so bruised, so shattered. I can feel for him, he's such a part of me and I want to protect him. What I can't deal with is being told that I have to make other people feel better. I keep being reminded that other people are sad about our loss and I should be trying to make them feel better. I just can't. I can't pick up the phone to comfort someone how hasn't even sent a message to see how were doing.

So, the days are moving past and we are trying to begin again. Nothing will change what has happened in the past or the hole in our hearts and lives where our babies should be, but we can try to look to the future and remind ourselves that next time, just maybe, things will be different.

I wish I knew then what I know now

I haven't written for a while. This loss had been really tough on us and is combined with tricky times for us both with family and at work.

One thing that I have been really aware of is just how lucky (blessed? I don't like using the word, but maybe it fits) I am to have such a supportive partner. I have seen a lot of ladies in my loss forums saying that they feel like their partners don't understand, that they don't grieve, that they are mean or say hurtful things. Many of these women are experiencing their first loss and I can totally relate to those feelings.

I knew that my husband felt something of our first losses as he was diagnosed with depression shortly after and started taking anti-depressants. What I didn't feel, however, was love, support or understanding. We actually went through a horrible time where I even started thinking that maybe we shouldn't be together anymore.

I can't say for sure what changed. I know I refused to stop talking to him about what I was thinking and feeling, and if his responses were hurtful or he told me he didn't know how to respond, I told him what I needed. I didn't expect him to guess. I also made an effort to actually ask him more often how he was feeling and what he was thinking. At first he didn't really respond, but once he did, my heart just broke for him.

I realised then that the main reason I hadn't felt loved, supported or understood was that he was doing all he could just to hold himself together. For example, he went straight back to work instead of staying with me because he needed to feel some sense of the world continuing and life going on. Once he admitted this, we were able to fully support each other instead of grieving alone. Now, after our most recent loss, I think we have been fully there for each other and I understand that he feels and expresses his grief in completely different ways to me. I think that is the key for so many of these women I see, they are so wrapped up in their pain (and understandably so) that they say that their partner SHOULD do, say or feel certain things. There is no SHOULD about grief and every person feels every loss differently.

After a conversation last week when someone told me "everything happens for a reason" we were talking about this latest loss. We both admitted, somewhat guiltily, that we were feeling this one a little more. Perhaps because it is still such a new, raw pain, but perhaps because we spent more time with this little one. Did that mean we grieved our other losses any less? I don't think so. They're all different and they all hold a seperate place in our hearts.

15 things everyone should know about grief after pregnancy loss

I found an article online, 15 things doctors don't tell you about grief after pregnancy loss but should, and as I read, I couldn't help but thinking that as much as I do wish someone had told me these things after my first loss, I think it is important for EVERYONE to know these things about pregnancy loss. So to do my bit, I am posting the list below. If you want to read more about each item on the list, please head to the original article (link above).

1) No matter what stage of loss during pregnancy it hurts
2) Some will not acknowledge your loss
3) It hurts like hell psychically and emotionally
4) You blame yourself 
5) You lose trust in your body
6) You feel isolated
7) You will grieve for what would have been
8) It happens more than you think
9) Some will be mean
10) You will grieve differently than your partner
11) It’s traumatic
12) There is support
13) A ritual goodbye can help no matter what stage of loss.
14) You are still at risk for PMADs but don’t confuse that with normal grief
15) You will always remember